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0-25 Cancer Service East Midlands
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0-25 Cancer Service East Midlands

NHS logo

  • Home
  • Children & Young People
  • Teenagers & Young Adults
    • All about cancer
    • I feel unwell
    • Our hospitals and treatment centres
    • Useful information
    • Beyond treatment
    • Where can I find out more?
    • Groups & Events
    • Contact us
    • Feedback
  • Parents & Carers
    • All about cancer
    • Urgent help
    • What to do if my child/young person has any side effects
    • Feedback
    • My Child/Young Person's Treatment
    • My Teenager/Young Adult's Treatment
  • Professionals
    • About us
    • Professionals Registration
    • Feedback

Useful information

  1. Home
  2. Teenagers & Young Adults
  3. Useful information
  4. Living with a terminal diagnosis
    Teenagers & Young Adults
  • All about cancer
  • I feel unwell
    • Urgent help
    • What to do if I have any side effects
  • Our hospitals and treatment centres
    • Transplant units
    • What to expect
    • Designated Hospitals
  • Useful information
    • IAM
    • Mental health and wellbeing
    • Hair loss and wigs
    • Meet The Team
    • Fertility and sexual health
    • Finance and benefits
    • Education and work
    • Transition
    • Living with a terminal diagnosis
    • Exercise
    • Neurodiversity
  • Beyond treatment
    • Education and employment
    • Fertility and sexual health
    • Lifestyle
    • Emotions and wellbeing
    • Family and friends
    • Looking and feeling better
    • Late effects of your treatment
      • Physical Concerns
      • Sex, Sexuality, Fertility concerns
      • Mental Health Concerns
      • Lifestyle concerns
      • Spirituality
      • Neurodiversity
  • Where can I find out more?
    • Patient stories
    • Clinical trials and research
    • National charities
    • Local charities
    • Travel and vaccinations
  • Groups & Events
    • Events
    • Look Good Feel Better sessions
    • Online support groups
    • Follow us on social media
  • Contact us
  • Feedback

Children & Young People

Teenagers & Young Adults

Parents & Carers

Living with a terminal diagnosis

Sadly, for some young people with cancer cure is not possible either because their outlook is poor from diagnosis or because despite anti-cancer treatment their cancer progresses or recurs.

When cure is not possible the goal of treatment and care is to help the young person live as well as they can. Palliative care plays a pivotal role in achieving this goal and our aim is to work with young people and their families to achieve the best experience possible

We aim to provide symptom management and work closely with the hospital palliative care team to ensure that the young people in our care a given an holistic patient centered approach to their illness.

Psychological care of both patients and relatives is also at the forefront of what we do, aiming to empower the young person to be in control as much as they want to be. There is also lots of practical support we can offer regarding for example-  finances, digital legacy and funeral planning.

For a patient with a non curative disease there can often be life left to live and as a team we encourage and facilitate our patients to embrace dreams and make memories.

For more information visit https://www.teenagecancertrust.org/get-help/support-friends-and-family/if-treatment-isnt-likely-cure-cancer

Palliative Care

Looking after young people with a terminal diagnosis is a specialised focus of care in which our aim is to control symptoms and relieve suffering. Our main goal is improving quality of life for our patients and their loved ones.

Read more

Bereavement support

As the TYA Team, we offer bereavement support to those whose young person passes away, this can be in the form of meeting up either at their house or at the hospital, or a telephone call. 

Read more

0-25 Cancer Services East Midlands is a partnership between University Hospitals of Leicester and Nottingham University Hospitals

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